Our story

She was given statistics. She chose love.

Choosing Noah Foundation helps families after a Down syndrome diagnosis because it is founded on a decision: a mother who was advised to terminate — by her doctors, and then by the people closest to her — and chose her son anyway. The name isn't decorative. Choosing is the whole thesis.

Yamileth Johnson, founder of Choosing Noah, holding Noah
Yamileth “Yami” Johnson — founder, author, and “Supernoah's Mom.” Became a mother at 17. Noah is her fourth son.
  1. 2017

    The phone call

    “Your baby tested positive for Down syndrome.” The results were delivered, in Yami's words, in a robotic and unsympathetic way — a list of statistics and worst-case scenarios, and no hope. Doctors suggested termination. Family agreed. She grieved a child who was still alive inside her, and then she made a choice.

    “I made a choice and that choice was LOVE.”
  2. February 2018

    Noah arrives

    From the first second she saw him, she knew — and it didn't matter. What she saw was her baby, who in small ways reminded her of each of his brothers when they were born.

    “He was definitely my child, and I knew that he was a part of us.”
    Noah moments after birth, held by gloved hands on a hospital blanket
  3. May 11, 2018

    My heart warrior

    A congenital heart defect was confirmed shortly after birth. At three months old, Noah had his first open-heart surgery. Yami and her husband said goodbye at the operating-room door, and when it closed behind them, both fell to the floor crying. It was the first time she had seen her husband's fear.

    “On May 11, 2018, I realized that I was not alone.”
    Baby Noah in the hospital after heart surgery, smiling with a bandaged head and monitors on his chest
  4. 2018

    Super Noah

    He fought to be here despite Down syndrome and a heart defect. The family started calling it what it was: a superpower. His superpower is love, and he uses it every minute of the day.

    “The “why me?” has now become “why not me?””
    Baby Noah in a red superhero mask and cape on a comic-book backdrop, oxygen tube visible
  5. 2020

    The blog

    During the COVID lockdown, quarantining at home with her sons, Yami started writing. The Diagnosis. Becoming Supermom. My Heart Warrior. The posts became the story a worldwide audience would follow — and the narrative core of this foundation.

    Toddler Noah laughing in a bright blue stroller on a Brooklyn sidewalk
  6. April 2021

    Walking

    Walking without assistance. Then preschool. Then, one day, “mum.” Yami describes hearing it like hearing someone you love say I love you — proof he knows exactly who she is.

    “In our family, we make sure to celebrate the big things and also the little things.”
    Noah with a backpack and blue glasses, grinning on his way into school
  7. 2025

    The book

    After five years of writing, Yami published the memoir Choosing Noah. To tell Noah's story, she had to first tell her own — going back before the diagnosis, before the surgeries, to who she was when she became a mother at 17.

    “Our strength didn't suddenly appear. It was built over time — through love, sacrifice, endurance and faith.”
    The cover of the memoir Choosing Noah by Yamileth Johnson
  8. 2026

    The foundation

    The three pillars are named — Choosing Hope, Choosing Community, Choosing Inclusion — and a family's story becomes an organization. Everything it does is a version of standing where Yami stood and telling the next mother she is not alone.

    “I was broken when I started this journey and now, I am helping other broken parents with their journey.”
What we hold to

Six commitments that settle every argument.

  1. Hope is delivered, not assumed.

    Nobody receives hope by accident. It has to be handed to someone, deliberately, by a person who went first.

  2. Tell the whole truth, both halves.

    We talk about grieving a living child and the floor outside an operating room. And then we turn toward joy.

  3. Strength is built, not granted.

    We are not an organization of exceptional people. We're proof that ordinary, frightened parents become capable ones — faster, with help.

  4. The person, before the diagnosis.

    Noah is a boy who loves school and colors and his brothers, who happens to have Down syndrome and a repaired heart. Language, photographs, and programs follow that order.

  5. The village is the point.

    The goal is not that we answer every question. It's that the parent three years ahead of you does.

  6. Celebrate the small things out loud.

    Walking. A first word. A color named. In this community the small things are not small.

Keep reading

The whole journey, in Yami's own words.

Six posts on the blog, and a memoir five years in the writing.